Media Coverage

Latest Updates

Media Releases

Cision Newswire | 85 per cent of Canadians now have publicly funded access to a potentially life-extending treatment for patients with rare lung disease, June 12, 2018

Cision Newswire | First province begins funding new life-extending treatment for patients with rare lung disease, March 6, 2018

Cision Newswire | Rare lung disease patients fear lengthy negotiation trend will delay access to another new therapy, putting lives at risk, November 17, 2016

Cision Newswire | Canadians with rare, complex and fatal lung disease fearful of one-size-fits-all approach to treatment, March 5, 2015

Cision Newswire | Equitable drug access urged for patients with rare, potentially fatal lung disease, December 3, 2015

Cision Newswire | Quebec breathes new hope into lives of those affected by pulmonary arterial hypertension, October 8, 2014

 

 

Media Coverage

Online

OttawaMatters.com | Local PAH sufferer could soon get her wish, April 14, 2018.

TheSpec.com | Rare disease diagnosis isn’t slowing down Ottawa resident, October 3rd, 2017.

OttawaCommunityNews.comRare disease diagnosis isn’t slowing down Ottawa resident, October 3rd, 2017.

L’HebdoJournal.comJessica Léonard, une battante dans l’âme qui entend aider les siens, August 17th, 2017.

TVANouvelles.ca | Elle luttle pour avoir accès à un médicament, August 9th, 2017.

LeDroit.comGrimper le mont Marcy “en l’honneur de ma mère”, June 2nd, 2017.

LaPresse.caAu coeur du souffle de l’espoir, January 17th, 2017.

Coup d’œil | Hypertension artérielle pulmonaire : une jeune femme atteinte d’une maladie rare, November 22nd, 2016.

Ottawasun.com | Working to keep livin’: Drug costs mean DND adviser can’t retire, November 13th, 2016.

Ottawacitizen.com | DND contractor needs to keep working to pay for life-saving drugs, November 12th, 2016.

Pulmonaryhypertensionnews.com | Ontario PAH Patients Rally to Demand Public Funding of Drug Opsumit, December 4th, 2015.

EpochTimes.com | December 4th, 2015.

BradfordTimes.ca | Calling for Access to Effective Treatment, December 16th, 2015.

CBC News Saskatchewan | Scleroderma Group Seeks More Help from Sask. Government, June 6th, 2016.

Broadcast

Daytime Ottawa, Rogers TV, May 8th, 2017.

The Carol Anne Meehan Show, 1310 News, May 4th, 2017. To listen to the interview, click here.

The Natasha Hall Show, CJAD-800AM, January 5th, 2017. To listen to the interview, click here.

Television du Haut Richelieu, ÉricLatour.com, November 21st, 2016.

The Current, CBC Radio Saskatchewan, June 6th, 2016. To listen to the interview, click here.