Pulmonary Hypertension Association of Canada (PHA Canada) and Scleroderma Canada (SC) are resources for patients and families affected by pulmonary arterial hypertension (PAH), including systemic scleroderma-associated PAH (SSc-PAH). Our advocacy efforts aim to raise public awareness and rally support around issues affecting the PAH and scleroderma communities in order to ensure their voices are heard and needs are met by government decision-makers.
This includes ensuring all PAH patients, including those with SSc-PAH, have publicly funded access to new and existing treatments—at diagnosis and beyond.
Your support can make a significant difference!
A great way to make your voice heard is to meet with your local provincial government representative in-person, to personally share your story and why you believe all PAH patients, including those with SSc-PAH, should have access to optimal treatment options.
Our Advocacy Packages include documents that will help you with the following steps:
Step 1: Request a meeting with your local provincial government representative
Step 2: Review guidelines and resources to help prepare you for your meeting
Step 3: Request that your local provincial government representative send a letter to the Minister of Health
Step 4: Contact your Minister of Health
PATIENTS LIVING IN QUEBEC, NEWFOUNDLAND AND LABRADOR, SASKATCHEWAN AND MANITOBA
In order to acknowledge this exciting announcement, please click here to access the email tool and send a letter thanking the government for their support in ensuring that Uptravi is accessible through public funding for patients in need.
PATIENTS LIVING IN THE REST OF CANADA
Even though progress is being made, there is still an urgent need to advocate for access to Uptravi in the rest of Canada.
Please click on your province below to download the relevant Advocacy Package.
If you need additional support or require a French advocacy package, PHA Canada and SC staff members are here to help!
Please contact PHA Canada at 1-877-7-PHA-CAN or firstname.lastname@example.org.
Please contact SC at 1-866-279-0632 or email@example.com.