PHA Canada and SC serve as a resource for patients and families affected by pulmonary arterial hypertension (PAH), including systemic scleroderma-associated PAH (SSc-PAH). Our advocacy efforts aim to raise public awareness and rally support around issues affecting the PAH and systemic scleroderma (SSc) communities in order to ensure their voices are heard and needs are met by government decision-makers.
This includes ensuring all PAH patients, including those with SSc-PAH, have publicly funded access to new and existing treatments—at diagnosis and beyond.
Your support can make a significant difference!
A great way to make your voice heard is to meet with your local provincial government representative in-person, to personally share your story and why you believe all PAH patients, including those with SSc-PAH, should have access to optimal treatment.
Our Advocacy Packages include documents that will help you with the following steps:
Step 1: Request a meeting with your local provincial government representative
Step 2: Review guidelines and resources to help prepare you for your meeting
Step 3: Request that your local provincial government representative send a letter to the Minister of Health
Step 4: Contact your Minister of Health
Please click on your province to download the relevant Advocacy Package.
If you need additional guidance and support, PHA Canada and SC staff members are here to help!
Please contact PHA Canada at 1-877-7-PHA-CAN or firstname.lastname@example.org.
Please contact SC at 1-866-279-0632 or email@example.com.
French advocacy packages are available here.